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First Christmas!

12/27/2014

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From Luke:
Christmas is kind of crazy.  We did a lot of traveling; I tried to eat a lot of paper (which was constantly getting fished out of my mouth), and Preston and I got some sweet new toys.  I would have liked to have gotten my two front teeth (implied song totally intended), but they have yet to make an appearance.  Preston is in his glory and loves EVERY new toy we brought home, including all of mine.  I hardly get to play with anything.  
We stayed at Grandma and Grandpa's house on Christmas Eve; Santa visited us there.  Grandma made me a new stocking for my first Christmas, and Preston and I had matching pajamas.  Tia Debbie joined us, too.
After breakfast and presents on Christmas morning we packed up and went to Gigi and Grandpa's house for Christmas dinner... and a TON more presents.  I snoozed through dinner, so Mom actually got to enjoy herself a little bit.  
Then the next day we went to Mema and Poppop's house for Mema's 84th birthday.  By then we were all on Christmas overload.  We needed all of today to recover, and Mom is still pretty worn out.  All she wanted to do was take a nap, but that was the last thing I wanted to do.  Tia Deb came over in the afternoon to help out a bit.  
In all it was a very fun first Christmas, and I'm pretty excited to do it all again next year.

From Preston:
Christmas is AWESOME!  I got SO MANY cool new toys and books and clothes and FISHIES!!  Yup!  Santa brought me 3 fish!  I want to feed them all the time, but Mom says they only get food once a day.  I also want to touch them and fish for them and play with them, but all they want to do is swim.  They live in my room, and I get to take good care of them.  
I also got a huge expansion pack for my Lego duplo train set from Uncle Joe that included a Diesel pulling freight (a flat car and a hopper), two switches, a bridge, extra track, a crane, a dump truck, AND a grade crossing.  Can you even imagine how awesome it is?  I'll tell Dad to get some pictures so you don't have to.  
I also got some awesome pieces for my wooden train set including a stone bridge from Liora and Talia, a fish pond, and two light up aquarium cars.  I currently have 3 different buildable train sets, and that doesn't include Daddy's O gauge around the Christmas tree.  What a lucky boy am I.  
Oh! And we got a Thomas Roller Coaster... yup, you read that correctly.  Lukey and I have to share it, but he's still too little to ride.  Maybe in the summer time. 

Kindred Spirits (as always):
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The best way out is always through - Robert Frost

12/23/2014

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I have learned many things in the last week, lessons that I can’t unlearn.  I suppose this story begins where we left off way back on Luke’s birthday.  We discovered a lump on Preston’s wrist, took him to the ER to have it x-rayed, discovered nothing else unusual, and then went upstairs to labor and delivery.  We suspected that the lump was a cyst and that it would go away in time.  It did not go away, but it didn’t change either, and a quick search made me 99% sure that it was a ganglion cyst, although they are very rare in children under the age of 10 (he had just turned 3 when we first discovered it).  Then, at one of Luke’s well-visits to the pediatrician in July Preston came along, and I had the doctor look at the bump.  He confirmed that it was probably just a cyst, but recommended that we eventually have it looked at by an orthopedic doctor.  There was never a sense of urgency about it, and we decided to put off the orthopedic appointment.  We thought that they may want to surgically remove it, in which case we would have liked to have had some extra money in our health savings account.  We get a new deposit from John’s insurance on January 1.  So in November (on Lincoln’s birthday! @Amy Silvoy) we finally saw the orthopedic doctor.  The cyst had not changed, neither bigger nor smaller.   And once again he was fairly certain that it was a ganglion cyst, but scheduled an ultrasound to confirm. 
After some miscommunications with appointments (which have become an increasing problem for me), John took Preston to his ultrasound last Monday (Dec. 13).  We fully expected to have a diagnosis of benign ganglion cyst; there was not a trace of doubt in my mind as I sent them off in the morning.  Then I got a text from John in the middle of my full team staff meeting – the ultrasound was inconclusive – rhythm of soft tissue – could be a ganglion cyst – possible blood flow – etc.  With each new detail my thoughts and my anxiety levels started to spin out of control. 
Why had we waited so long?  What did it all mean?  What is the next step?  When can we take this thing out? 

I asked myself literally millions of questions.  I thought of every horrible scenario that could possibly happen, and I had to wait until Friday to have a follow-up appointment with his doctor to find out the next step. 

This was probably the most terrifying week of my life.  I’ve been through other times of anxiety involving my own health.  The thought process was the same, but my fear was intensified tenfold.  There was something threatening my baby, my beautiful, smart, caring, thoughtful, little baby. 

John and I decided that we weren’t going to tell our families until there was something to tell.  There was no sense in spreading the debilitating worry that a possible malignant diagnosis casts on families.  We told a few friends and some people at work.  I know I was having a hard time focusing on tasks; John seemed more level headed than me.  He is a rock.  He holds this family together.  He is what kept me going.  One night, my Dad called me, and through the course of our conversation he used the quote “the best way out is always through.”  I latched on to that.  Countless times I wanted to sleep through the days of waiting for more answers.  I even visited my doctor to see about getting some anti-anxiety medicine.  She did give me a prescription, but I couldn’t take it while nursing (unless I dumped any milk that I pumped within 24 hours of taking the medicine).  I wanted to take it so badly to be strong for my family.  But John and I have had this conversation before, the first of many lessons I learned this week:  Even though feeling of fear, worry, and anxiety can be consuming, they need to be felt.  In fact, all feelings need to be felt, conquered, and put away.  I could have taken Xanax, but it would have made me sleepy, unable to feed my baby, and useless to my family.  The best way out is always through.  Xanax could have been a way out for me, but it was not the best way for my family. 

Another lesson that I learned (and this is a case of “fool me once shame on you, fool me twice or multiple times shame on ME) is to not use the internet as a doctor.  Indeed, my mind was put at ease many months ago when I first googled the bump and discovered that it looked exactly like a benign ganglion cyst in every way.  After the ultrasound results I started googling different possibilities, and that is when the terror closed in.  I don’t even want to write the words or thoughts that were in my head because I just want to forget them.  DON’T GOOGLE!!

I did get some peace of mind at our follow-up pre-op appointment with Preston’s orthopedic doctor.  We knew early in the week that the next step was to biopsy the lump.  We thought that was going to happen at his appointment on Friday.  Being overcome with worry I called the doctor before our appointment, and I’m quite sure he thinks I am a neurotic, crazy person, because he asked if John would be at the appointment the next day.  The biopsy is a surgical outpatient procedure and needed to be scheduled.  The doctor was fantastic.  In fact, my almost 4-year old who won’t even stand on a scale at a doctor’s office told me in the car on the way to the appointment “Mommy, the doctor is just going to look at my bump, that’s not scary.”  The doctor said things like “Problems grow” and “I could swear it’s a ganglion cyst” and “if you had to see what I see on a daily basis, you would know that this is not a worry.”  Those words got me through a very long weekend, until surgery on Monday morning.

I knew that we had a plan to move forward with this mystery, and the next step was surgery.  We were supposed to get a call by Sunday night letting us know when to report to the surgical suite on Monday.  Preston was supposed to fast before going in, so we thought we would get to go early.  The call never came.  We started calling every number we could find on our paperwork, but no one could find any record of a surgery scheduled for Preston.  Finally, they said we needed to wait until Monday morning at 8 to call the doctor’s office when it opened.  Our last attempt was to set our alarms for 5am when the surgical office opened to call one last time.  They still had no record and again told us to wait until 8.  I couldn’t sleep.  We were sure that we weren’t going to get a slot, that they surgery would need to be rescheduled, that my anxiety would be pushed another few days.  It’s the week of Christmas, who knows when we could reschedule, so many people will be out on vacation.  
So we called the doctor’s office at 8.  They asked us when he last ate, and we knew they were going to try to squeeze us in.  John and Preston left immediately to head to the hospital, and my emotional roller-coaster continued. 
I tried to make it a normal morning.  I gave Luke some breakfast, packed his bottles for daycare, and dropped him off.  I was going to head straight to the hospital, but John told me they were just waiting around and to stay home.  So I went home and prayed and cried.  And then I pulled myself together and went to Target, because – damn it – this is going to be a normal, wonderful, happy Christmas, and I needed to get a few more presents. 

I should have John write this next part, but I’ll take a stab:
Back at the hospital, John and Preston waited patiently.  Preston had his tablet, so he was occupied until it was time to head to the prep room where he became hysterical.  He would not stand to have his weight checked, he wouldn’t take his clothes off to put on the hospital gown, he wouldn’t let go of John for any reason.  He screamed and cried for Mommy.  When they needed to take him back to anesthesia they first brought an oral sedative to try to calm him down, but he wouldn’t open his mouth.  John tried to pry his mouth open to get the drops in, but Preston bit down so hard on the finger that he drew blood (but later apologized).  Finally, John just left the room, and we are not quite sure what happened after that except that they gave him gas to calm him down and then hooked up his IV for anesthesia. 

I arrived at the hospital just as the doctor was speaking with John about the surgery.  When I walked in, in a blind tizzy and so very worried the first thing the doctor said was “It’s benign, and he did great.”  He said that it looked exactly like a benign ganglion cyst, a pathologist confirmed, and that they sent a sample to the lab just for confirmation.  He left the cyst in because a removal is a much more involved and needless process.  Preston has a large bandage that looks like a cast on his wrist, but is otherwise…. Perfect.

John and I headed straight to the recovery room where my tiny child lay on a hospital bed, asleep, hooked up to many machines, but peaceful.   I cried, but it was with relief.   I also cried at the sight of him, thinking “so this is what it feels,” not knowing then or now how to put words to the feeling. 

Preston woke up by himself after about 20 minutes.  The nurse was concerned that he would be upset when he woke up.  He was confused and sad, but just wanted to be held.  She let me take him out of his bed a hold him in my lap.  I told him that he was brave, and that I was so proud of him.  John rubbed his back and held my hand, and all was right.

We had to stay in the hospital until he passed several check points.  He also had to drink some apple juice to make sure that he could keep it down.  That was a bit of a struggle because he kept saying that he wanted to get a drink at home.  But I eventually challenged him to a “drink off” and he beat me (please don’t let this be a sign for his college days!!)).  After his first cup of juice I think he realized how hungry he was because he wanted lots more juice and two bags of pretzels.  Then at 2:30 they let us go home.  We weren’t sure if he could walk or if he was still a little sleepy from the anesthesia.  So we set him down gently.  I held his hand as we walked down the hallway, and he jumped over a metal plate that ran across the hallway (I think it was a stream and he didn’t want to get his shoes wet). 
 

Today it is as if nothing happened.  He is back at school for his Christmas party, and we are able to move on with Christmas. 

I have learned many things from this experience.  
I will never again wait to have something checked out.  We had a stupid reason for waiting, and I would have NEVER forgiven myself for waiting if it had turned out to be a problem. 
I will not google medical issues.  I’ve told myself this one many times before, and somehow I caved this time.  I think it’s because I was so sure of it being a ganglion cyst, that I wanted to reaffirm.  But all it did was terrify me. 
The best way out is always through.  This may become an anthem for my life.  It doesn’t offer a lot of comfort when you are in the moment, I’ll admit.  But when you are looking for alternatives to whatever hardship is facing you, it might be wise to think more deeply about the alternatives and know that patience, faith, and hope are the best alternatives: the ones that will get you “through.”

Children are precious gifts, and parenting is the hardest job on earth.  We are so very lucky for all the advantages that are afforded to our family.  We have an incredible health network within minutes of our home.  We have an incredible support network.  And we have two healthy little boys.  I have a husband and partner that does so much more than should be required of him.  He knows how to navigate all the parts of my heart, and his strength and awareness keep our family together. 
This may not be our last crisis.  I hope and pray that it is the worst, and that they are few and far between.  I pray for all families who go through similar experiences where the results are not as favorable. 

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9 Months!

12/14/2014

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From Luke:

I turned 9 months old on Friday!  Can you believe it?  We celebrated by doing a cute Christmas baby photo shoot.  Mom will post the link.  We also visited Pip the Mouse at the Liberty Bell museum and took a trip to the Library.  
I'm still getting over a bad cold from last week.  I do feel better, but I've taken some good naps this weekend to help me recover.  The big news for me is that I can now push the infamous beat-boxing tonka truck across the floor, walking behind it!!  I'll be walking unassisted in no time.
Today, I had Mom and Dad all to myself for most of the afternoon.  Preston was on an adventure with Grandpa to ride the "Santa train"  an event that I'm looking forward to participating in next year.  I helped Mom make a pecan pie, and last night we all pitched in to make cut-out cookies.  We bake a lot as a family in the spirit of the holidays.

Here's the link to the full Christmas Photo Shoot
And for Pip the Mouse
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Some photos from Pip the Mouse:

From Preston:
I guess I'm pretty far behind, because we didn't even post about getting our Christmas Tree!  It's Luke's first one, so it's sort of important (although everything this year is first for Luke).  We went with Grandma and Grandpa to chop down our trees, and we picked a beauty (the very first one we found).  We think Daddy picked up some poison ivy while out in the wilderness, so he's been grouchy on a steroid all week.  We caught it early enough this time that he didn't get a horrible disfiguring rash, so I guess we can't complain about his attitude too much.  
Here are some pictures of our tree!
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"Cimanon" Rolls - and another Tooth!

12/4/2014

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Tonight, Preston and I read a book called "Trucks Roll!" which sparked a conversation about Cimanon Rolls, which are apparently Preston's FAVORITE.  He requested that I make them for him, but then decided that it would be VERY hard, so he would have to help me.  We need a few ingredients in order to make them from scratch so I mentioned a trip to the grocery store tomorrow after school to which he replied:
"Mommy!  We actually need TWO things at the grocery store" holding up two fingers, one on each hand "cimanon... and cimanon rolls.  Then we can make... cimanon rolls!"  He has it all figured out.

Preston also started gymnastics tonight.  As predicted it took him a long time to warm up, but I was proud of him.  By the end of the class he was doing the activities on his own and I could sit on the sidelines.  It's very frustrating having a child that totally wants to go have fun with the other kids, but is too stubborn and scared to let go.  We are working on it, and it will get better each week.

We also had a cute conversation about birthdays.  Preston is VERY competitive and found out at school the other day that his friend Evan will have a birthday before him.  He was a little upset by this and came up with a creative solution to "beat" Evan to his birthday:
"Mommy, when it is Evan's birthday I can turn his birthday off.  And then it will be MY birthday, and then I can turn Evan's birthday on again.  Does that sound good?

From Luke:

I am NOT trying to be a baby anymore.  I am ready to become a toddler, and Mom and Dad are definitely not ready.  I am pulling myself up onto furniture and toys, and I am trying my hardest to cruise.  I’ll figure it out soon!  My new favorite game is to play “so big” with Mommy when she changes my diaper.  I’m also experimenting with waving “bye-bye” and next we are going to work on clapping hands!  I love taking baths with my big brother, even though he’s not always happy about it.  I like to swim like a fish on my belly!  If Preston is in the bath before me I crawl at the speed of light into the bathroom to watch him, and I’m so squirmy that Mommy can’t get my clothes off.  Why can’t I just take a bath with my clothes on?  It would be so much faster.  Speaking of which, I do love to crawl in the shower with my clothes on, especially in the morning when Daddy is in there (or right after he gets out, as long as there is still some water in the bottom so I can splash!)

A few night ago I gave Mom and Dad a really hard time.  They still don’t know why, but I was up 3 or 4 times and I did NOT want to go back to sleep.  It doesn’t help that I know how to pull up on my crib now, so instead of staying on my belly and fussing myself back to sleep, I immediately stand up and can’t figure out how to get back down (although even in the last 2 days I am definitely getting better and getting myself down again, I fuss a little bit, but then gently ease myself down, I figured that out WAY quicker than Preston).  I then get hysterical and boogery and my pacifier falls out of the crib (did I mention I’m recently OBSESSED with my paci?).  Daddy says it’s only a phase.  Mommy can only hope.  They both decided to lower my crib.

From Mommy,
It’s been 3 years, but it is all flooding back to me.  It’s funny how babies find the same naughty things, play the same games: splashing in the water in the dishwasher and the shower, remote controls –cell phones – regular phones – anything with buttons, cat food dishes and water, stairs, baby gates, cords and cables, anything dangerous.  It’s like living in the land of deja-vu.  We should know better by now, and do for the most part.  But babies apparently love to find the most dangerous thing in the room and head straight for it.  I remember when Preston was this age he would stand up on the dishwasher while I was cleaning up from dinner and reach STRAIGHT for the sharp knives in the utensil basket.  Guess who does the exact same thing now…  Forks, spoons, measuring cups, lids, and even table knives are clearly not dangerous enough for babies who live on the edge.  
I have to say, though, that this is a VERY cute age.  I love the Luke it becoming more independent (and MUCH sooner than Preston who still needs more attention than his baby brother).  I see my baby fading away in a mix of emotions: pride and nostalgia, bittersweetness.  
Luke also got his second tooth on Tuesday!  (Dec. 2nd bottom tooth on the left- yes I keep notes for the baby book on here)

Preston is also blossoming into a vibrant, bright, and witty 4 year old.  As his brother teeters his way into toddlerhood, Preston prances and bounds his way out.  Gymnastics is a hopeful outlet for his endless energy (Daddy wished he could harness it to heat the house; we would have energy in abundance).  When I look back to this time last year I realize how very far he has come.  Last Christmas he was intensely contradictory and exhaustingly obstinate.  I remember calling my mom in tears of frustration one night because we just could not deal with him.  While he still has his stubborn attitude, he has started to turn around and mature.

How does it go so fast?  How do I slow it down?

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